Posts Tagged ‘2007 Former Trainees’


Who is answerable to whom? Exploring the complex relationship between researchers, community and Community Advisory Board (CAB) members in two research studies in Zambia

Tuesday, March 13th, 2018

Abstract

This paper explores the accountability relationships that arise between researchers, the community and community representative structures known as Community Advisory Boards (CABs). It draws on ethnographic and case study research that documented the history, recruitment, composition and representativeness of two CABs and their relationships with researchers and communities, carried out in two studies in Zambia between 2010 and 2014. The findings revealed contradictions, nuances and imbalances in actual community participation and representation. In both studies, the general population was not given the opportunity to participate in the election of their CAB representatives, and the elected CAB members themselves were initially told to have little or no direct contact with research participants whom they were supposed to represent (unless researchers dictated otherwise). Owing to the researchers’ monopoly of scientific knowledge, literacy and financial resources, power relations were imbalanced. Further, researchers were quick to ask for and formalise community commitment through the CABs whilst reticent about their own accountability to the community. Yet despite these imbalances and CABs lacking formal authority over researchers, CABs did have subtle powers arising from their wider influence in the community, which they could tap into to either support or resist research. To achieve a more balanced and open accountability between research stakeholders, more genuine participatory processes need to be built and sustained.

 

Keywords: Accountability, community engagement, community advisory boards (CABs), power, representation

Congratulations Pauline Osamor on being awarded post-doctoral fellowship at the NIH!

Thursday, November 3rd, 2016

Pauline Osamor was awarded a post-doctoral fellowship at the Clinical Center, Department of Bioethics, National Institute of Health, Bethesda, Maryland.

 

Implementing Community Engagement for Combination Prevention: Lessons Learnt From the First Year of the HPTN 071 (PopART) Community-Randomized Study

Thursday, November 3rd, 2016

Book Release: Research Ethics in Africa

Tuesday, August 12th, 2014

We are excited to announce the publication of Research Ethics in Africa: A Resource for Research Ethics Committees, a new book that focuses on research ethics issues in Africa by Mariana Kruger, Paul Ndebele (FABTP alumnus), and Lyn Horn.


Funded by an EDCTP capacity development grant, the book brought together past EDCTP and Fogarty trainees who now actively work in the field of research ethics, to write a book on research ethics, from a uniquely African perspective.


Part I introduces the book, provides a history of research ethics in Africa and the discussed the MARC project (the Mapping of Research ethics committees throughout Africa). Part II  ‘The Research Ethics Committee’ comprises five chapters and covers the operation of an REC including running a meeting, developing standard operating procedures etc. Part III covers many specific topics such as traditional medicine research, public health research, vulnerable participants, risk benefit assessment and many others.  Part IV is a section with valuable resources such as a chapter on Educational resources and the Part V contains some useful templates.


We are very proud to list the following FABTP alumni among the authors in this collection:

Nicola Barsdorf ’03

Caroline Kithinji ’06

Paul Ndebele ’01

Musonda Simwinga ’07

Paulina Tindana ’02



The book is available as a paper copy and an ebook, which will be free of charge for persons living in Africa.


Research Ethics in Africa: A Resource for Research Ethics Committees Mariana Kruger, Paul Ndebele, Lyn Horn. 2014 SUN MeDIA ISBN 978-1920689-30-8

Applying ethical principles to international community-based research: A case study from the consortium to respond effectively to the AIDS-TB epidemic (CREATE).

Thursday, May 22nd, 2014

Views of dental professionals and dental patients in Jos, Nigeria concerning the need for informed consent prior participation in dental clinical research

Monday, February 24th, 2014

Effect of household and community interventions on the burden of tuberculosis in southern Africa: the ZAMSTAR community-randomised trial

Tuesday, October 22nd, 2013

Congratulations to Dr. Nwobegahay!

Thursday, June 27th, 2013

The Johns Hopkins-Fogarty African Bioethics Training Program (FABTP) would like to congratulate Dr. Julius Nwobegahay (FABTP 2007) for successfully completing his PhD in Microbiology at the University of Venda, South Africa! Dr. Nwobegahay’s PhD focused on molecular virology and his thesis was titled, “Human Immunodeficiency Virus Genetic Drug Resistance and Subtype Distribution in Northern South Africa.”  Since completing his PhD, Dr. Nwobegahay has returned home to Cameroon and is presently working at the Yaounde military hospital.

FABTP Alumnus Honored

Thursday, June 20th, 2013

The Johns Hopkins-Fogarty African Bioethics Training Program (FABTP) congratulates Olaniyi Taiwo, a program alumnus, for being honored with the award for Dissertation of the Year by the University of Liverpool.


Taiwo

Taiwo’s dissertation in the university’s Masters in Clinical Research program was an expansion of his work as a member of the 2007 FABTP class, concerning consent for participation in dental clinical trials in Africa; the dissertation is titled  “Elements of Consent Form for Participation in Clinical Trials: Priorities of Dental Patients and Dental Care Professionals in Outpatient Dental Settings in Plateau State, Nigeria.”


Before participating in the FABTP, Taiwo earned a Bachelor of Dental Surgery (BDS) from the University of Ibadan, Nigeria, and served for nine years as a Research Fellow and HIV/AIDS Program Officer with the Regional Centre for Oral Health Research and Training in Plateau State.


Motivated by the vulnerability of clinical trial participants and the communication gap he observed between them and researchers, Taiwo pursued bioethics training at the Berman Institute.  He subsequently advocated for the establishment of an ethical review committee and organized in-house bioethics seminars for his colleagues; he also proved his hypothesis of poor communication in the oral health clinical trial context by conducting a study of post-consent understanding in three different trials. The study was published in BMC Medical Ethics.


Since 2001, the FABTP has supported scholars and institutions in sub-Saharan Africa in building regional research ethics capacity.  In 2012, the program received a five-year continuation grant from the Fogarty International Center of the U.S. National Institutes of Health.  An inaugural African bioethics consortium meeting was held at the Berman Institute in June 2013, aimed at sustaining and supporting the growing body of work by alumni like Taiwo, and those they have trained at their home institutions.